As a patient with a rare disease himself, Mohammad quickly realised he was often repeating his story and explaining his condition to the healthcare experts he routinely saw. These healthcare professionals relied on him to provide accurate information about his condition and like many patients, he, therefore, became the ‘expert’ on his own health.
From this experience, Mohammad understood that patients not only have the power to change their own health destinies but they also hold the key to a more sustainable and responsive healthcare system which better meets the needs and expectations of citizens. However, to make this a reality, they need access and accountability of their health records.
With a bold aspiration to empower patients to ultimately ‘know best’ and backed with independent research to demonstrate the benefits of this approach, in 2008, Mohammad founded Patients Know Best.