PKB Registries

A whole systems approach for sharing
 and collecting real-world patient data

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Working in partnership with leading institutions

Contracted for 12 million lives

Transform your registry. Share and collect data for real-world evidence including, vital signs from wearables and your choice of PROMS and PREMS from patient-entered data.

 

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Share data

Give patients access to their data in real-time using Europe's largest patient data network and personal health record. 

Real-world evidence

Generate patients data for research from monitoring applications, lab results or questionnaires.

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Sharing real world experience

“It has given us a chance to work together as a team in a safe environment to work through answering patients’ questions and work out how to explain complex things in patient-friendly ways.”

Bethany, First-year medical student

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Innovation for the specialist care and management of diseases and long-term conditions

Connect to the live personal health records of your patient cohorts to improve clinical excellence and outcomes.

  • Gather real-world clinical and patient-generated data for research, audits or patient care.
  • Access advanced features for care planning or team-based messaging.
  • Remotely monitor patients in real-time using an ecosystem of integrated devices.
  • Connect partners (with patient consent) to cohorts nationally i.e. charities and pharmaceuticals.
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The PKB Registry Dataflow

Established registries that collect and hold data for the patient to see, can send data to be displayed in PKB while in return, directly collect real-world data from patients. Other registries looking for clinical and 'real-world' data, can work with PKB and our associated clinical teams, to request registered patients to open their records to the registry directly. Put simply, this means you can share and collect data from:

  • a range of institutions plus data manually recorded by the patient
  • questionnaires issued by institutions for disease-specific PROMs
  • an ecosystem of ‘best of breed’ remote monitoring devices.
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CASE STUDY 
Monitoring the safety of ketamine for treatment-resistant depression

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Try Patients Know Best for your registry

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